Isla's legacy: Long QT Syndrome awareness

Hi, I'm David. My daughter, Isla, was diagnosed with Long QT Type 3 when she was born back in 2015. Since then I have dedicated my life to learning as much as I can about it; talking with cardiologists, electrophysiologists, researchers, industry experts and patients from around the world. Despite all the medications and precautions, Isla died in 2022. She inspired a team of scientists in Canada to begin developing new treatments for Long QT Syndrome and I have been working alongside Thryv Therapeutics to help share stories and raise awareness.